Who treats Dercums disease?

Who treats Dercums disease?

These include endocrine (hormone) disorders and lipoedema (a buildup of fat in the lower half of the body). Since this is a very rare condition, you may need to be diagnosed by a specialist. This could be an internist, dermatologist (skin doctor), or an endocrinologist who treats hormone (gland) problems.

Does Dercums disease qualify for disability?

Getting Social Security Disability insurance (SSDI) for Dercum’s disease. Since individuals with Dercum’s disease often experience debilitating pain, individuals with this condition may qualify for SSDI.

What is Anders syndrome?

Dercum disease – also known as Adiposis Dolorosa, Anders’ syndrome and Dercum-Vitaut syndrome – is a rare condition that is characterized by multiple, painful fatty lipomas (benign, fatty tumors) that occur chiefly in post-menopausal, obese women of middle age.

Is Dercums disease fatal?

According to a review in the Orphanet Journal of Rare Diseases , Dercum’s disease is anywhere from 5 to 30 times more common in women. This wide range is an indication that Dercum’s disease isn’t well understood. Despite this lack of knowledge, there’s no evidence that Dercum’s disease affects life expectancy.

How do I get rid of adiposis dolorosa?

Management of adiposis dolorosa is difficult. No treatments that are currently available have led to long-lasting, complete pain reduction. Surgical removal of particularly burdensome lesions and/or liposuction may be helpful for some people.

Why am I getting so many lipomas?

Lipomas are much more common in people who report a family history of developing lipomas. Medical conditions. Some medical conditions increase the risk of developing lipomas, such as Gardner syndrome, adiposis dolorosa, familial multiple lipomatosis, or Madelung disease.

Why is my lipoma so painful?

A lipoma that is tender or painful is usually an angiolipoma. This means the lipoma has an increased number of small blood vessels. Painful lipomas are also a feature of adiposis dolorosa or Dercum disease.

What causes adiposis dolorosa?

The cause of adiposis dolorosa is unknown. The condition is thought to have a genetic component because a few families with multiple affected family members have been reported. However, no associated genes have been identified.

What is considered a large lipoma?

Lipomas are usually small solitary lesions and rarely grow to an exceptionally large size. A lipoma is considered giant when it is greater than 10 cm in any dimension or weighs more than 1000 gm [3].

What kind of pain does Adiposis dolorosa cause?

Adiposis dolorosa is a rare condition characterized by the growth of multiple, painful, lipomas (benign, fatty tumors ). The lipomas may occur anywhere on the body and can cause severe pain.

What kind of Doctor to see for Adiposis dolorosa?

Those who only have excess fat accumulation in the head, neck region, and upper torso should be diagnosed with Madelung’s disease. The types of doctors that may evaluate person with symptoms of adiposis dolorosa include internists, dermatologists, and endocrinologists.

Which is more common Dercum disease or Adiposis dolorosa?

It’s also referred to as adiposis dolorosa. This disorder usually affects the torso, upper arms, or upper legs. According to a review in the Orphanet Journal of Rare Diseases, Dercum’s disease is anywhere from 5 to 30 times more common in women.

What are the symptoms of Adiposis dolorosa lipomas?

The lipomas may occur anywhere on the body and can cause severe pain. Other symptoms may include weakness, fatigue, and memory disturbances. It usually occurs in adults, and women are more commonly affected than men. Adiposis dolorosa is chronic and tends to be progressive. The exact cause is unknown.